Meditation and deep sleep apps help a lot to relax the muscles everywhere. I am sure that stress is a contributory factor - I was very stressed when I got the persistent and recurring thrush which turned into vulvodynia. Your recently viewed items and featured recommendations, Reviewed in the United States on November 6, 2016. I was gradually getting better and had stopped the steroid cream as you cannot use those long-term. I have vulvodynia and recurrent thrush. Ill continue to use till the tube runs out. I also insert vitamin e oil (400iu) once a day (break an oral capsule and squeeze it out onto your clean finger and insert - I usually squeeze it onto a blob of the coconut oil then insert). : euroclorin (spero che sia il nome esatto)l'avete mai usato? Perhaps a combination of this 3 will help with all my other skin problems, over time. To calculate the overall star rating and percentage breakdown by star, we dont use a simple average. I had tons of yi in the past years, I can't remember which started first, and I hope if I can find the right diet I might get rid of both.! Read our editorial policy. To my friends credit, she didn't realize, she just assumed that tomato was the only one I had a problem with. Scusa le domande ma cerco di capire il nesso con il saginil . As the day goes on it burns more and more. Just thought I should write a review so people are aware to it approach with caution. Sono andata alla visita con i risultati dei ormoni in mano, sono perfetti. Worst, I lost my trust. On my 13th day of Estrace and itching and burning so bad in my vagina. Are they compounded? I have just started using Dermol 500 lotion. The consultant dermatologist was very impressed with me because I was so determined and didn't give into urges. He put me on amitriptyline and steroid cream. It also reminds me that I had read that vulvodynia can be caused by a reaction to oxalates in food. Wow. These slowly worked for a while and made me comfortable enough to have a long overdue smear test. I am currently very confused to try which approach. We are sorry. I found out about these ointments from an NHS booklet online, from 4 years ago! Try again. Per saperne di pi sulla gestione dei tuoi dati ed esercitare i tuoi diritti, puoi consultare l'informativa sulla privacy. For the first few hours after application I thought this was helping with the irritation and itching however within, maybe 4 hours (for some reason my reactions are always delayed - I think its called sensitization) everything was worse than ever, it caused a very bad flare up of the vulvodynia leaving me red, raw, itching and in pain. I just wanted to share an update on my experiments. I watched a really helpful video yesterday:(How to use an elimination diet in vd management) that shows how to do find what food might be causing allergic reactions in our bodies. Is it possible I have Pudendal Neuralgia or Vulvodynia So I did some investigating to find someone else who could help me and found a dermatologist consultant in Oxford who specialised in vulva pain. Nel mio pap test c'era voce: flogosi aspecifica. Now i avoid all of these foods and I am absolutely symptom-free. But I had no other symptoms. I don't know if my problem can't be called vd if it is related to dermatology rather than nerve system. Here are some things I'd like to share in case it helps anyone else out there: I kept saying 'my' vulvodynia because everyone seems to have different issues, I believe mine is a dermatological issue since the creams help so much but these might not help everyone else. It calms down the overactive and hypersensitive nerves. I am 73. i hope this helps. Con gli ormoni come stai messa ? In the end it doesnt matter exactly what cures us, just that we are cured. Reviewed in the United Kingdom on 31 March 2017. No,mi spiaceio sono un esperta di candida come molte ragazze quine ho sofferto per piu di un anno e mezzo di seguito in maniera grave,ma non ho mai sentito di questo prodotto..io ne sono uscita definitivamente,da piu di 2 anni senza nemmeno una ricaduta usando l omeopatia.. 3 -Mi piace 1 -Mi piace I think stress is the hardest to 'fix' of all. I had to apply twice a day as per the instructions for 10 days before I saw an improvement. Patient aims to help the world proactively manage its healthcare, supplying evidence-based information on a wide range of medical and health topics to patients and health professionals. Extreme heatwaves or cold, anything which would interrupt the 'lower region', is basically something which every woman has to cope with, and the tighter the clothing or underwear, the worse it gets. i saw the dermatologist and she told me all the things that she had found worked to get rid of the pain, but nerve pain is difficult to get rid of so she suggested I try them all and stick at it. Posted 5 years ago, 10 users are following. Saginil gel produced by the company Epitech is based on the concept of ALIAmidi Packaging: Airless dispenser 30 ml. Posted Stress is so hard to pinpoint to connect with illnesses as it's not like a physical thing you can rub on your arm and see a visible reaction. Read our editorial policy. Saginil gel - you can order it direct from the suppliers, epitech, on their website. So I did a bit of research and found a consultant dermatologist who specialised in vulval pain. Full content visible, double tap to read brief content. My gp knew someone who had had it for 20 years! If anything, my sexual desires are stronger than my hubbys and he doesnt give me enough!!! It seems to me that, because you have other skin issues, you need to see a dermatologist. This page works best with JavaScript. Makes me extra stressed on top of everything. when I was saying it hurts so I can't have sex with him a lot. I have nocturnal itching from Vulvodynia and this helped calm any irritation/ no more itching either. But of course the vagina and vulvar have the most mucous membranes and I got the most pain there. I wonder if those foods that caused you problems are high in oxalates? Egton Medical Information Systems Limited. I got mine form a mother and baby shop (for women to sit on after they have given birth. It's too soon to say if it will cure it but I am hopeful. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515228 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"2285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1EyIDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emaraM"eilH-en9489242s3nappsnasnappsna d vidvi', 'af_jsencrypt_30614'). Gine ha dettoChe tutto a posto. There was a problem adding this item to your Basket Please try again later. I wonder if this is who you have seen? I've used many things and they usually just cover up symptoms and not fix the underlying problem so it just happens over and over again. I've also known of one child who used to get horrible eczema. I gradually reintroduced foods over the next week, and found that the symptoms slammed back about one hour after I ate some potato. Amazon.com: Customer reviews: Saginil Gel 30ml - Water: 3 days ago when I spoke with my GP she told me low oxalate diet is unrelated and even if I had high ox I should just drink lots of water. Purtroppo ho una brutta infezione da candida che mi perseguita da mesi, ho fatto varie cure, a base di fluconazolo, creme, ovuli, fermenti. I'm sure I'm effected by not just my family but the whole culture and media everywhere suggesting these things. I feel depressed I can't enjoy tasty junk food ever again and I want to hope I can once my body recovers from whatever the hell is happening to it. Another informative video about yeast infections and vd:I love his holistic, anti drugs approach. i was surprised because, appears from upping the amitriptyline dose to 50-70mg a day (I was on 20), the rest of the things were what you would class alternative, or natural, cures. By that time I had used the steroid cream for as long as is recommended and had stopped it (long term use not recommended). Sitting definitely aggravates. She said she had many women who just got fed up with how long it was taking and just went for a long walk / bike ride / horse ride or had sex and put themselves back at square one again. Slowly but surely its reducing all the symptoms of vulvodynia. Going back to my original HRT hasn't helped, the tissues are still sore and nerves are still outraged ! Again, don't do so much that it causes an increase in pain or lasting pain - cut back if that happens. Then each day you gradually build up the strokes in number and pressure. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413655591 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024135-5"5916 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez2U1kTMalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emahot"no103_057ps7nasnappsnasnap vididv', 'af_jsencrypt_30602'). Reading all your info and crying at the same time. Look for a similar lotion / creams. Anyway, my friend knows about my allergy to nightshades, but she served some sauce on the snags (sausages) that she said didn't contain tomato. Treat that area gently while you are trying to recover. Click Customise Cookies to decline these cookies, make more detailed choices, or learn more. What brand is that? Now in addition to vag pain have anal pain. Upgrade to Patient Pro Medical Professional? It is mainly about vaginismus, but the exercises apply to vulvodynia too - just don't do them sitting on a juggling ball (ouch) do them standing up first, then lying down, as it advises in the book. First of all, while you are curing yourself, you need some immediate relief so that at least you can function from day to day. It took me 1.5 years of determination and the occasional disappointing set back to cure my vulvodynia. Always read labels and instructions before using any product. It didnt bother me that I didnt know what was and wasnt working, all that mattered was that I was getting better. They are called emulsifying ointments. respect of any healthcare matters. He took a biopsy of the painful area and confirmed no diseases or cancer. I have been on the internet driving myself crazy. So glad to be rid of it. Si..ne ho sentito parlaresolo una domandama tu sei andata personalmente a informarti su questi prodotti..o te l'ha consigliato la ginecologa? Mine personal favourite was coconut oil - I found that soothing but the oily stain can show through clothes, so panti pads are advised when out and about. He is a urologist/GYN. I hate to stop eating all the delicious cakes, breads, junk food and even the healthy tomatoes and stuff but I feel like a special diet can fix this. In the end it doesnt matter exactly what cures us, just that we are cured. Amazon assumes no liability for inaccuracies or for missing or outdated information. I wanted to try the low oxalate diet, just found out about it while googling, but my gp dismissed it, and any other holistic approach really. I am intolerant of so many additives etc. and Privacy Policy and steps will be taken to remove posts identified Follow. I was so depressed. google search and it will show pharmacies selling it. Jury is still out on that one. That's interesting. Im so happy to have found all you girls, Ive been suffering of vulva pain itching and burning in the last 6 months, feeling very said and depress. not moderated or reviewed by doctors and so you should not rely on opinions or advice given by other users in ?One dose of Daktacort lasts a while, it may cause a runny feeling but it does work. Also, you need to get some organic, chemical free sanitary towels for when you have your period (no tampons). Even now, 5 years later, I still apply coconut oil after every time I go to the toilet, use tonnes of oil based lube during intercourse, go around the house wear no knickers. But it has a lot of additives and smells of flowers. Please make sure that you've entered a valid question. It gets very good reviews.I first read about it in a vulvodynia site where it was highly recommended. Very similar feeling of soreness and irritation to vulvodynia. Sei in cerca di ispirazione? I also got myself one of those cushions shaped like a donut with a hole in the middle to sit on while i worked on the computer and in the car. Basically, the family of plants that make up the Solanaceae have four main alkaloids that are all toxic to a various extent. I was symptom free for about 10 years but switched HRT 18 months ago and am still paying the price. All rights reserved. But for me it is working. I really like that it just feels like a neutral gel. I understand what you are going thru. Recently I have gone completely dry - my GP thinks my ovaries have finally packed in. Toilet paper has bleach in it, so I got some tissues that were bleach free and used those to wipe after doing a wee. And good on you for trying everything and finding three that worked for you. I started using Dermol 500 (there are other brands you can try, I hope I don't sound like I'm marketing a product) 6 days ago, I was putting it on almost every time I went to the toilet, and especially before going to bed. No exercise, no sex, only washing in the intimate area with water (I used coconut oil), no tight clothes - I work mainly from home so I was able to go around all day with no underpants on, just baggy jogging bottoms or a skirt. That gave me the hint that my problem might be diet-based. I live in the UK, by the way, and have private health cover. A week later it is slowly getting better bit by bit each day. Western means that they leave the meddles in and pass electricity through them. I've been trying different things for years and even one more day is too much at this point. I feel like my vulvadynia is an inflammation, dermatological/internal, like someone else said as if the toxins coming out of my pores burn my skin and cause all this irritation. The acupuncture was a revelation, form the first day I tried it my pain reduction was accelerated and I felt the difference after each session. It feels a million times better than last week. Using a layer of gauze swab and a piece of cotton instead of pads feels a ton better than any other commercial pad or liner I have used, no matter how cotton they market it to be. appropriate medical assistance immediately. perch la mia un po' contro queste cosecio preferisce le classiche cure 2 -Mi piace I am also still on 50mg amitriptyline a day. I know how you feel, is is horrible and has an impact on you daily life. Thank you for sharing your experience; and its so good to hear of a good doctor and a positive experience. Reviewed in the United Kingdom on 25 February 2022. I found coconut oil soothing. Sorry, there was a problem saving your cookie preferences. It also analyzed reviews to verify trustworthiness. Coconut oil was soothing (raw, cold pressed, organic coconut oil) so I applied that externally and internally with a clean finger after every time I went to the loo (I carried a little pot in my hand bag so I could apply it while out and about with an organic, pesticide and bleach free cotton pad). i apply vaseline if i swim . It looks like WhatsApp is not installed on your phone. I have just started using Dermol 500 lotion. There is a suppository that combines the two - i can't give the name because my message then gets moderated- I pop one of those in when I go to bed at night. 113 users are following. I had vulvodynia in 2013, and it was exactly as you describe. But am still left with a problem with sitting for any length of time, and burning of the vulval area. Patient does not provide medical advice, diagnosis or treatment. Third parties use cookies for their purposes of displaying and measuring personalised ads, generating audience insights, and developing and improving products. So, massage yourself there just enough so as not to cause lasting pain afterwards. Thank you both for sharing your stories in detail! I upped the amitriptyline to 50mg as day, very gradually by 5mg every 1 or 2 weeks because it caused side effects so my body needed to adapt to each increase. i agree most definitley that my hormones are a big factor . There's also an oily cream called Cervagyn, I only use this when Dermol isn't working, or when I go out (it's just a smaller package). If you agree, well also use cookies to complement your shopping experience across the Amazon stores as described in our Cookie Notice. There is another product, but it is not a suppository, it is coconut and other oils inserted using an applicator - Yes oil based lubricant. Dear Suki girl. You are a star..many thanks for all the info. Please try again. I would be very grateful if you could contact me privately re the lady dermo you have found.. Do hope this post will get through, it's the first time I have joined a forum! Do you think you could send me the name of the consultant dermatologist you saw, who specialised in vulval pain, in a private message? Notes on Is it possible I have Pudendal Neuralgia or Vulvodynia, https://patient.info/forums/discuss/is-it-possible-i-have-pudendal-neuralgia-or-vulvodynia-592838. Ill continue to use till the tube runs out. Hurts more when sitting. Try our Symptom Checker Got any other symptoms? Aufeminin, titolare del trattamento, raccoglie queste informazioni in modo da poterti inviare comunicazioni commerciali personalizzate, soggette ai tuoi interessi. I actually felt pain free enough to have my smear test - big mistake. Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. (bangs head on the wall). per 10 applicatori!!! When he had pneumonia and had no strength for sex for a long time his GP didnt say your wife must be very patient!! Regardless, I've been using it (mostly) twice a day since January 16th. respect of any healthcare matters. Probably more like 2 years to get back to normal. Makes a huge difference for me. Ciao, passato un p di tempo.Volevo chiederti se possano esserci conseguenze se il sanigil gel per uso topico viene messointerno. Or my skin / body was just dying with thirstiness.. I tried vagifem but that just made me swell up inside so much I couldn't even get a finger in. i had 2 months of pain but pretty much under control at present. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515564 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"5645 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1E1YDNalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emauoM"an7903435ps1nasnappsnasnap vididv', 'af_jsencrypt_30610'), 5 -Mi piace I was at a friend's party last week and we were all outside around the barbecue (this is Australia, it's hot as hell for Christmas here!) It is silly because I realise we're endorsing a product, but there is only one such suppository and women with vaginal atrophy should know about it. So it is best to wait a few months after being pain free. It is a shame your GP is unwilling to consider alternative therapies. Go knicker free if you can - I work mainly from home so was able to go around with no knickers on and baggy jogging bottoms or a skirt. Instead, our system considers things like how recent a review is and if the reviewer bought the item on Amazon. I should try to find a different dermatologist but I am so fed up (also broke at this point). After my smear test the symptoms came back full force. Ma lo spotting premestruale lo hai sempre avuto? I have never heard of the problem you had with solanine. as being in breach of those terms. jsdchtml3('dc visalfa"=sa-trelhgir-b-totto m-fa-tsopcanoit "s=ferh"uroftcamnoisnaew7r602413515328 " apsalc nssca"=-noitrap"tne ps nassalc"=p-fatsowsna-re-fa -tsopsna-rewotlgg-fa etbof-nmurb-fa ntrof-p--mumir yraocennUdetcesnOsr"ylpsiRnoidnaps naps vidalc"=ssfard-wodpo"n=di fa"pord-odr-nwnopse-es6024131-5"3285 idlc vssa-fa"=op-nipc-ntbsolci enolc-b-esont-fa ordnwodpc-esold"vi s naplcssa-fa"=rdodpo-nw metifaord-nwodper-"ylpapsad natcne-edonil-d=kZ2L"tVncvF2LlGdjbvh9iZ3NnbIX8yNvjM0EzM2A"1alc a"=sst-fbo-oufacs19-et84 "7 issalc"=nocinoci ra--worpuel-"tfips nassalc"=d-faodpor-nwlper"yiRdnopsiapsnnapsaps n napslc =ssaa"d-fodpornweti-a mord-fdp-nwoylperot-s"ap n-atadneedocl-d"=kni2LncvZF2LtVGdjibvlh9NnbvIXZ3yNjM08M2AzL1Ez1EzIDOalc "=ss-fa"otbo-acsufet419-"78 i lc=ssanoci"ci a-no-fser-dnopot"i napslc=ssad-fa"pornwodr-lpe"ot-yRopsiidns a aplc n"=ssa-faresun-emageM"ah832n951s71apnnapssnapaps n iddvvi', 'af_jsencrypt_30616'). Error posting question. As I was recovering I walked longer and longer distances. Customer Reviews, including Product Star Ratings help customers to learn more about the product and decide whether it is the right product for them. La dottoressa quindi ha deciso di prescrivermi, l'ultima volta che ci sono andata, questo gel gi inserito negli applicatori. 1 -Mi piace Over this last year I have been getting dryer down there and have found coconut oil (organic, raw, cold pressed) very helpful - you just get a blob of it on a clean finger and insert it - I do that after every time I go to the toilet. Reviewed in the United Kingdom on 28 January 2017. The saginil gel and amitriptyline helped to pain the pain bearable but what cured it for me was western acupuncture, pelvic floor exercises and manual desensitisation (stroke yourself on the painful area, starting with one very gentle stroke, then gradually increasing the number of strokes and the pressure each day - this retrains the nerve she to register touch as touch and not pain).